Today is marked by the world day of hemophilia, it is estimated that around 400,000 people worldwide have this congenital illness, and in Serbia there are 900 such people, out of which 170 children.
The Parliament of Serbia, Albania palace and other buildings will turn very red in support of patients, communicated from the Hemophilia Society of Serbia.
Statistics show that only the fourth person in the world available adequate treatment. What is not the case in Serbia where every person out of 900 available modern diagnosis and therapy and all at the expense of the Health Insurance.
Given that hemophilia an incurable disease, whose consequences may be disability or even death can obtain, all the attention of physicians, patient associations and healthcare institutions focused on preventative action and prevent undesired consequences of the disease, according to the Association.
From the Institute for mother and child Doctor Dragan Micic explains that these are innate disease, where patients blood clotting missing only one factor. “When someone does not factor in blood clotting he is prone to bleeding, which can sometimes be life-threatening,” as explained Micic. Sometimes patients occurring and moderate haemophilia, where the bleeding can not be stopped after the injury, but there are also those with a severe form in which the most common in large joints bleeding spontaneously occur.
“Bleeding caused by haemophilia are sick, it takes time to go, and after several years of joint loses function and leads to complete disability,” says our source, “Tanjug” and adds that there is no adequate remedy for the treatment of hemophilia, but there are drugs to stop or prevent bleeding.
Then added: The main effort in the treatment is preventive or prophylactic administration. Therapy usually begins in the second year of life and lasts a lifetime. Before former patients for each therapy, came to the hospital which usually took place two or three times a week, and today they are allowed to work alone or at home with the help of a nurse.
Micic stressed that patients if properly treated can be normal to exist that work without any pain, to express all their potential and increase their service life and to average with a normal healthy man.
Can happen various complications and the most dangerous are the deterioration of joints and disability. Damaged joints treated in two ways operation and replacement, and what that says Dr Micic is not so developed in Serbia and in this area there is much to do and corrects the situation. Also, another complication of the disease is the appearance of antibodies and for this there are some special drugs that are also available in Serbia patients.